CAMBRIDGE, Mass. (WHDH) -
A successful hedge fund banker in London has quit his job and moved to Boston in hopes of finding a cure for his three-year-old son's disease.
Ilan Ganot's son, Eytani, was diagnosed with Duchenne muscular dystrophy a year ago. A couple of weeks after the diagnosis, Ganot uprooted his family and moved to Boston, where there's a lot of research being done on the disease and access to investors and his two partners.
Duchenne is a somewhat rare form of muscular dystrophy that only affects boys. Most sufferers don't live past the age of 30 and there is no cure.
"He is an amazing boy. He doesn't deserve what's coming his way," Ganot said.
He founded a biotechnology company called Solid Ventures in Cambridge to try and find a cure. Eytani's name in Hebrew means "solid," hence the name.
"We have a great plan, we have meaningful amount of capital, we have great access, we're getting it going. That's what we're here to do: a job and it's, I couldn't be more motivated," Ganot said.
When asked about a timetable, Ganot said it was still up in the air, but he's confident that he can make a dent in the disease within the next two to three years.
Solid Ventures has already gotten some attention, receiving millions of dollars in investments.
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